Care, Information, Education and Support:

Huntington's Disease Society of America
http://www.hdsa.org

Caring Voice Coalition:

** Assistance with medicine co-pays and disability applications.
http://www.caringvoice.org/supported-diseases/huntingtons/

HD Lighthouse Families:  
http://www.hdlf.org/welcome

Help 4 HD:
Support, information, and education re HD management, research and resources.
https://help4hd.org

Help 4 HD Radio:
https://help4hd.org/help-4-hd-radio

Chorea Matters:
** Lunbeck website regarding chorea and how to treat it. If you sign up, you get a free recipe cookbook geared toward HD nutrition. 
http://www.choreamatters.com/Default.aspx  

HD Youth Organization (If you are young and at risk or have HD, this is a great website!):
http://en.hdyo.org/you

HDSA Webinars:

http://hdsa.org/living-with-hd/caregivers-corner-webinars

The International Huntington Association:
http://www.huntington-assoc.com

HD and Sexuality:
https://www.huntingtonsvic.org.au/virtual-library/resources-list/doc_view/103-information-sheet-13-sex-sexuality-and-huntington-s-disease

HD Identification Bracelets:
https://interland3.donorperfect.net/weblink/weblink.aspx?name=E5596&id=150

Medical Care and Genetic Counseling- Northern California:

UCSF Memory and Aging Center Huntington's Disease and Ataxia Clinic
http://memory.ucsf.edu/patientcare/neurogenetics

Stanford Huntington's Disease and Ataxia Clinic

https://stanfordhealthcare.org/medical-clinics/movement-disorders-center/huntingtons-disease-ataxia-clinic.html

UC Davies Huntington's Disease Clinic
https://www.ucdmc.ucdavis.edu/huntingtons

Written Materials:

Educational Publications about HD:
http://hdsa.org/shop/publications
In Person Support Groups:

California & National:
http://hdsa.org/about-hdsa/locate-resources

CA Support Groups for people with HD and their care partners:
2018 HD Support Group.pdf

Online Counseling and Support:

Free Online Counseling Sessions for People with HD and their family caregivers (NEW!):
https://www.americanwell.com/press-release/huntingtons-disease-society-of-america-launches-first-of-its-kind-free-telehealth-counseling-for-hd-families/

HDSA Online Support Groups (NEW!)
https://www.supportgroupscentral.com/groups_detail_as.cfm?cid=27&CFID=46719556&CFTOKEN=84a6459652a1a375-E5DDFA2E-BAAA-C092-301F321A24B01A8B

HD Care:

HD Physician's Reference Guide
http://hdsa.org/wp-content/uploads/2015/03/PhysiciansGuide_3rd-Edition.pdf

Understanding Behavior in HD
http://hdsa.org/wp-content/uploads/2015/03/Understanding-Behavior.pdf

A Caregiver's Handbook to Late Stage HD:

https://www.huntingtonsnsw.org.au/sites/default/files/Care%20Giver%20Handbook.pdf

Health Insurance:

Genetically Handicapped Persons Program (GHPP)
http://www.dhcs.ca.gov/services/ghpp/Pages/default.aspx

Safety:

Driving and HD:
http://web.stanford.edu/group/hopes/cgi-bin/hopes_test/driving-and-huntingtons-disease/

Law Enforcement Training Guide:
http://hdsa.org/wp-content/uploads/2015/05/HDSA-LET-Guide1.pdf


Research Information:

Trial Finder: Information on research trials currently recruiting.
http://www.hdtrialfinder.org

HD Buzz:
International HD science articles authored by scientists for a lay audience. Has an RSS feed.
All recent articles (with subject tags linking to other related articles):
http://en.hdbuzz.net
 
CHDI:
A US non-profit biomedical foundation that aims to  "rapidly discover and develop drugs that delay or slow the progression of Huntington's disease"
http://chdifoundation.org
 
HOPES:
HOPES is a student-run project at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to patients and the public. Our goal is to survey the rapidly growing scientific and clinical literature on Huntington’s disease, and to present this information in a coherent, reliable web resource. 
http://www.stanford.edu/group/hopes/cgi-bin/wordpress
HD NEWS:
https://huntingtonsdiseasenews.com/

Documentaries:

"Her Mother's Daughter"
http://hdsa.org/hmdfilm/

 "The Lion's Mouth Opens"
http://www.lucywalkerfilm.com/THE-LION-S-MOUTH-OPENS

"Huntington's Dance" by Chris Furbee
http://www.huntingtonsdance.org

We Have A Face
http://www.wehaveaface.org

Twitch
http://twitchdocumentary.com

Past Events:

HD Symposium Nov. 19, 2016/ UCSF:
2016 HD Research Symposium Agenda.pdf

HD Events around the US:
http://hdsa.org/events

HD Symposium 2013/ UCSF:
Live talks addressing HD research updates and practical tips for care:
http://memory.ucsf.edu/blog/10th-annual-huntington-disease-research-symposium-611