Child pages
  • Li-Fraumeni Syndrome (LFS)

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  1. Overall, I think it's great, especially the illustrations. The one thing I might consider changing is the the wording "particularly in children and young adults." It seems just a little confusing. I might say something like, "you can get cancer in different parts of the body and at a much younger age than usual." However, other people may feel differently about the wording. 

  2. I think the page provides great information to educate families about diseases.  The pictures are useful for complicated diseases involving multiple organs.  The inheritance pattern is clear.  I like it that one of the purposes of the infographic is to encourage seeking medical advice.  I think we talked about having a link to a national group for the diseases, or support group, or more information for families that want more information; however, it would be a lot of work to add those links and might also result in families not contacting doctors and trying to manage the disease on their own with online resources.  

  3. Good graphic and informative overall. There is a bit of overlap between #4 and #5 which can be consolidated into just one question ( good job on the inheritance pattern), but I think it is fine to leave it as is. For #3, I might be overthinking this, but I wonder if the patient might be confused with those measures as a cure.    

  4. Excellent graphics. I also like the flow through from 1 to 5. I particularly think 5 does a great job as for many families this is a key question.

    Comments: "... particularly in young children in adults" - perhaps rephrase "children and young adults are particularly  at risk" (not easy to phrase)

    Comments: "1: What I am at risk for" change to "What am I at increased for?"

  5. From a graphic design POV, nice work. I think it looks good and is readable. The images seem pertinent to the text.  

    Among suggestions for improvement are

    • Cancer screening → Regular cancer screening. I.e., this is not a one time thing
    • Depending on the audience, "radiation" might not be understood. You might give concrete examples: "Limit exposure to X-rays, CT scans, and radiation therapy"
  6. Very nice graphics. Nothing to add specifically. Unaffected child might have a lighter gray or white?)

  7. I agree with others that the graphics are very helpful and intuitive. I would change "radiation exposure" and symbol to common things people may encounter that involve radiation (e.g. Chest X-Ray, dental X-Rays, etc.).  I also agree that the wording "particularly in children and young adults" could be confusing.